Apert Syndrome 10
Cleft Lip and Palate 28
Craniosynostosis 2
Langer-Giedion Syndrome 2
Parry-Rombergs Syndrome 4
Smith-Magenis Syndrome 3
Stickler's Syndrome 4
Treacher Collins Syndrome 4
| |
 AboutFaceAboutFace
 International organization providing information and emotional support to individuals and their families affected by facial differences and disfigurements.
|
Beneath the SurfaceBeneath the Surface
 Offers support and understanding to individuals of facial difference.
|
Birthmark Support GroupBirthmark Support Group
 From the UK-based group, giving information about birthmarks, the process of getting help, treatment centres, newsletters, diaries of events and links to other associated support groups.
|
Cancer Of The Eye Linkline (CELL)Cancer Of The Eye Linkline (CELL)
 UK-based helpline for people whose lives are affected by loss of an eye through cancer or trauma. Support, information and links.
|
Changing FacesChanging Faces
 UK-based charity giving support and information to people with facial disfigurement and other facial differences and their families, and the professionals who work with them.
|
Children's Craniofacial AssociationChildren's Craniofacial Association
 Dedicated to improving the quality of life for facially disfigured children and their families; addresses the medical, financial, psychosocial, emotional, and educational concerns relating to craniofacial conditions.
|
The Craniofacial Society of Great Britain and IrelandThe Craniofacial Society of Great Britain and Ireland
 Information about the society, which is a multidisciplinary forum for specialists.
|
Crouzon's Bridge of Hope FoundationCrouzon's Bridge of Hope Foundation
 Bridging the gap between hope and knowledge for those suffering with Crouzon Syndrome.
|
The DRM WebWatcher: Facial DifferencesThe DRM WebWatcher: Facial Differences
 A Disability Resources monthly guide to online resources about craniofacial differences.
|
FACES: The National Craniofacial AssociationFACES: The National Craniofacial Association
 Support and resources concerning craniofacial disorders including information on 28 specific craniofacial disorders. Financial assistance for secondary costs. USA based organization.
|
Foundation for Faces of ChildrenFoundation for Faces of Children
 Expert information for families and health care professionals about craniofacial conditions.
|
Johns Hopkins Center for Craniofacial Development and DisordersJohns Hopkins Center for Craniofacial Development and Disorders
 Provides information on research, education and clinical care for researchers and physicians. An educational interactive resource for families. Details of activities at the Center.
|
Let's Face It USALet's Face It USA
 A nonprofit network for people with facial difference, their families, friends and professionals. Links professionals, patients, parents and communities to each other and to networks, books and articles.
|
Moebius SyndromeMoebius Syndrome
 Moebius Syndrome support, information and resource site.
|
The New Face FoundationThe New Face Foundation
 A non-profit corporation that treats children born with facial and craniofacial deformities such as cleft lip and cleft palate.
|
The Personal Side of Craniofacial DifferencesThe Personal Side of Craniofacial Differences
 Personal accounts of living with craniofacial conditions, and related webrings.
|
Sincere MeditationsSincere Meditations
 Born with a severe facial disfigurement, David Roche has turned his "flaw" into a source of strength and he brings this to his audiences.
|
Support Works OnlineSupport Works Online
 Resources to find or form support groups related to facial difference. Information on medical research.
|
XP Support GroupXP Support Group
 UK-based organisation giving support, help and information to those affected by xeroderma pigmentosum and other photosensitive conditions.
|
|
